Fertility and Sterility
Volume 83, Issue 6 , Pages 1612-1621 , June 2005

Opinions about new reproductive genetic technologies: Hopes and fears for our genetic future

Presented at the American Society for Reproductive Medicine Annual Meeting, San Antonio, Texas, October 13, 2003; the American Society of Human Genetics Annual Meeting, Los Angeles, California, November 8, 2003; and the American Society for Bioethics and Humanities Annual Meeting, Philadelphia, Pennsylvania, October 31, 2004.

  • Andrea L. Kalfoglou, Ph.D.

      Affiliations

    • Genetics and Public Policy Center, Phoebe R. Berman Bioethics Institute, Johns Hopkins University, Washington, DC
    • Corresponding Author InformationReprint requests: Kathy Hudson, Ph.D., Genetics and Public Policy Center, Phoebe R. Berman Bioethics Institute, Johns Hopkins University, 1717 Massachusetts Ave., NW, Suite 530, Washington, DC 20036 (FAX: 202-663-5992).
    • ,
  • Teresa Doksum, Ph.D.

      Affiliations

    • Abt Associates Inc., Cambridge, Massachusetts
    • ,
  • Barbara Bernhardt, M.S., C.G.C.

      Affiliations

    • University of Pennsylvania Health System, Philadelphia, Pennsylvania
    • ,
  • Gail Geller, Sc.D.

      Affiliations

    • Genetics and Public Policy Studies, Phoebe R. Berman Bioethics Institute, Johns Hopkins University, Washington, DC
    • ,
  • Lisa LeRoy, Ph.D.

      Affiliations

    • Abt Associates Inc., Cambridge, Massachusetts
    • ,
  • Debra J.H. Mathews, Ph.D.

      Affiliations

    • Genetics and Public Policy Center, Phoebe R. Berman Bioethics Institute, Johns Hopkins University, Washington, DC
    • ,
  • John H. Evans, Ph.D.

      Affiliations

    • Department of Sociology, University of California at San Diego, La Jolla, California
    • ,
  • David J. Doukas, M.D.

      Affiliations

    • Department of Family and Geriatric Medicine, University of Louisville, Louisville, Kentucky
    • ,
  • Nancy Reame, Ph.D.

      Affiliations

    • School of Nursing and Reproductive Sciences Program, University of Michigan, Ann Arbor, Michigan
    • ,
  • Joan Scott, M.S., C.G.C.

      Affiliations

    • Genetics and Public Policy Center, Phoebe R. Berman Bioethics Institute, Johns Hopkins University, Washington, DC
    • ,
  • Kathy Hudson, Ph.D.

      Affiliations

    • Genetics and Public Policy Center, Phoebe R. Berman Bioethics Institute, Johns Hopkins University, Washington, DC

Received 27 July 2004 ,Revised 20 January 2005 ,Accepted 20 January 2005.

References 

  1. The President’s Counsel on Bioethics. Reproduction and responsibility: the regulation of new biotechnologies. Washington, DC, March 2004. Available at: http://www.bioethics.gov/reports/reproductionandresponsibility/index.html. Accessed July 22, 2004.
  2. Frankel MS , Morris P . A view from the field on Food and Drug Administration regulation (report of a 2002 survey of U.S) . fertility clinics. Fertil Steril . 2003;79:1060–1062
  3. Drazen JM . Inserting government between patient and physician . N Engl J Med . 2004;350:178–179
  4. Government of Canada. BioPortal: The Government of Canada’s biotechnology resource for consumers, industry, scientists and educators. Available at: http://bioportal.gc.ca/english/BioPortalHome.asp. Accessed March 5, 2005.
  5. Human Genetics Commission [United Kingdom, Web site]. http://www.hgc.gov.uk/. Accessed March 1, 2005.
  6. Pardo R , Midden C , Miller JD . Attitudes toward biotechnology in the European Union . J Biotechnol . 2002;98:9–24
  7. Kerr A , Cunningham-Burley S , Amos A . Drawing the line (an analysis of lay people’s discussions about the new genetics) . Public Underst Sci . 1998;7:113–133
  8. Kerr A , Cunningham-Burley S , Amos A . The new genetics and health (mobilizing lay expertise) . Public Underst Sci . 1998;7:41–60
  9. Barns I , Schibeci R , Davison A , Shaw R . “What do you think about genetic medicine?” Facilitating sociable public discourse on developments in the new genetics . Sci Technol Hum Values . 2000;25:283–308
  10. Dietrich H , Schibeci R . Beyond public perceptions of gene technology (community participation in public policy in Australia) . Pub Underst Sci . 2003;12:381–401
  11. National Ethics Committee on Assisted Human Reproduction (NECAHR). Guidelines for preimplantation genetic diagnosis in New Zealand. Public Consultation Document. September 2004. Available at: http://www.moh.govt.nz/moh.nsf/0/d7d420cab2fbd7cecc256f2200777602?OpenDocument. Accessed January 3, 2005.
  12. Human Genetics Commission and Human Fertilisation and Embryo Authority. Outcome of public consultation on preimplantation genetic diagnosis. November 2001. Available at: http://www.hfea.gov.uk/AboutHFEA/Consultations/PGD%20outcome.pdf. Accessed July 22, 2004.
  13. Human Fertilisation and Embryology Authority. Sex selection: options for regulation [2003]. Available at: http://www.hfea.gov.uk/AboutHFEA/Consultations. Accessed July 22, 2004.
  14. Genetics and Public Policy Center. Public awareness and attitudes about reproductive genetic technology. December 9, 2002. Available at: www.DNApolicy.org. Accessed July 22, 2004.
  15. Genetics and Public Policy Center. Reproductive genetic testing: What America thinks. December 2004. Available at www.DNApolicy.org. Accessed April 7, 2005.
  16. Singer E , Corning A , Lamias M . The polls: Trends: genetic testing, engineering, and therapy: Awareness and attitudes . Public Opin Q . 1998;62:633–664
  17. Singer E , Corning AD , Antonucci T . Attitudes toward genetic testing and fetal diagnosis, 1990–1996 . J Health Soc Behav . 1999;40:429–445
  18. Singer E . Public attitudes toward genetic testing . Popul Res Policy Rev . 1991;10:235–255
  19. Milner KK , Collins EE , Connors GR , Petty EM . Attitudes of young adults to prenatal screening and genetic correction for human attributes and psychiatric conditions . Am J Med Genet . 1998;76:111–119
  20. Virginia Commonwealth University Life Sciences. VCU Life Sciences Surveys. Available at: http://www.vcu.edu/lifesci/centers/cen_lse_surveys.html. Accessed July 22, 2004.
  21. Laskey SL , Williams J , Pierre-Louis J , O’Riordan M , Matthews A , Robin NH . Attitudes of African American premedical students toward genetic testing and screening . Genet Med . 2003;5:39–54
  22. Singer E , Antonucci T , Van Hoewyk J . Racial and ethnic variations in knowledge and attitudes about genetic testing . Genet Test . 2004;8:31–43
  23. Communities of Color and Genetics Policy Project. Genome technology and reproduction: values and public policy. Web site. Available at: http://www.sph.umich.edu/genpolicy. Accessed July 22, 2004.
  24. Bernard RH . Research methods in anthropology (qualitative and quantitative approaches) . Walnut Creek, CA: AltaMira; 1995;
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  26. Creswell JW . Qualitative inquiry and research design (choosing among five traditions) . London: SAGE; 1997;

 Supported by a grant from the Pew Charitable Trusts (2001-003723).

PII: S0015-0282(05)00364-X

doi: 10.1016/j.fertnstert.2005.01.090

Fertility and Sterility
Volume 83, Issue 6 , Pages 1612-1621 , June 2005

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